Compliance with dietary management, regular monitoring of blood phenylalanine (Phe) levels, clinic appointments, and the mental and emotional stress of living with a chronic disorder can make maintaining blood Phe levels within the recommended range more difficult for patients over time. Helping patients and caregivers talk openly about their challenges living with phenylketonuria (PKU) may keep them engaged.1-4
Consider asking your patients about their experiences living with and managing PKU, such as details about work, school, and social relationships
Consider asking your patients if there are situations where they are struggling with work, school, or personal relationships
Consider asking your patients if they are experiencing feelings of social isolation
Consider asking your patients about their top 2 to 3 issues that they struggle with
Could your patients be struggling to control their Phe?
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