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There are many resources that can help people with PKU

Support for your patients with PKU

Resources and support options are available to help your patients and their families learn how to manage their phenylketonuria (PKU). Go to pku.com for helpful information, tips, and resources you can share with them, including advocacy groups, such as Flok.org and National PKU Alliance (NPKUA).

Disease education materials for your patients

Impact of High Phe

Symptoms of high blood phenylalanine (Phe) levels vary from person to person. Help your patients learn how high blood Phe levels may be affecting them and what they can do about it.

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Clinic Discussion Guide

This tool can help start the conversation with your patients with PKU.

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PKU Symptom Checker

PKU affects everyone differently—use this questionnaire to note how PKU symptoms affect your patients.

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Collecting Blood Phe at Home

Discuss how to collect blood Phe at home.

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Social/Family Support

Go to pku.com

Patient Support Groups

Go to pku.com

Patient Materials and Resources

Go to pku.com