Expert Talks

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2024 SSIEM – BioMarin symposium

With new data emerging from both clinical trials and real-world observations, the management of PKU is ever evolving. In this short video, the expert panel (Dr Johannes Krämer, Prof Ania Muntau and Prof Júlio César Rocha) highlights the key messages of the BioMarin satellite symposium at SSIEM 2024, sharing their personal experiences and insights on navigating the changing treatment landscape by answering key questions on living with phenylketonuria, treatment goals, and management strategies. If you are interested to know more about latest researches and data presented at 2024 SSIEM on PKU, please download the conference summary at this link.

Time: 8:40
Veeva code: EUCAN-PAL-00241

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Expert Talks

Featured

Breaking barriers: sustaining metabolic control in PKU

Multiple factors make living with PKU challenging, including the burden of a lifelong restricted diet and the consequences of elevated Phe levels. In this webinar, experts (Dr Ania Muntau, Dr Cary Harding and Dr Stephanie Sacharow) engage in an interactive panel discussion to share their personal experiences and insights on the importance of reducing blood Phe levels and strategies to achieve sustained metabolic control.

Time: 1:07:53
Veeva code: EUCAN-PAL-00219

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ECHO

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The ECHO M.A.P. Programme

The ECHO M.A.P. (Maximising Advances in Phenylketonuria) programme links specialist hubs with local hospitals to support the best-practice care for PKU patients. Watch the on-demand ECHO M.A.P clinical site readiness training webinars to support the implementation of pegvaliase in your clinic.

Time: 8:00
Veeva code: EUCAN-PAL-00174

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