Vosoritide in children <2 years of age: Real world experience and practical tips – Webinar

For those of you who were unable to join us for this engaging and informative case-based webinar, the recording is now available on-demand! This webinar aims to provide you with insights from leading clinicians on the practicalities of vosoritide in children <2 years of age, including multidisciplinary team management, neurological considerations within the first year of life, a real-world case study and practical support for parents and caregivers.

Achondroplasia Masterclass

Our expert editorial committee have identified essential areas of interest to ensure that our educational activities cater directly to the learning requirements of achondroplasia specialists. The aim of these videos are to support your professional growth and enhance your practice by delving into the dynamic landscape of achondroplasia management strategies.

ESPE 2023 Highlights Broadcast

NOW AVAILABLE ON-DEMAND! For those that were not able to attend or want to rewatch our ESPE broadcast featuring Professor Maghnie and Dr Hoyer-Kuhn discussing the latest data from the 2023 ESPE meeting held over 21-23 September, an on-demand version will be coming soon to Achondroplasia.expert.

Anthropometric Parameters in Achondroplasia – Webinar

Watch our faculty as they talk about anthropometric parameters and the different approaches in measuring them across EMEA.

VENN: ACH Masterclass – Session 1

In this first session recording from the VENN virtual meeting, listen to our expert faculty discuss taking the decision to start vosoritide therapy with a patient and their family; examine how to manage communication and anticipate challenges; review a case study looking at how an individual with achondroplasia was assessed prior to initiating treatment with vosoritide; and answer questions from the audience in relation to patient assessment and taking the decision to start therapy.

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VENN: ACH Masterclass – Session 2

Here our faculty discuss the initiation of vosoritide therapy in individuals with achondroplasia, with observations from both a doctor’s and a nurse’s perspective. In this session from the V.E.NN virtual meeting, they will talk about what is required from a site readiness perspective, review the baseline measurements and investigations that should be performed, and examine the training needs for patients and their families. The session also includes a case study discussing treatment initiation, as well as two Q&As, where our expert faculty respond to audience questions about starting vosoritide therapy.

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VENN: ACH Masterclass – Session 3

In the third recorded session from the V.E.NN virtual meeting, listen to our expert faculty discussing best practices in Europe for the follow-up and monitoring of patients who have received vosoritide therapy. Topics include how patient monitoring affects time management and resources in the clinic, and how to keep the patients motivated throughout treatment. Our experts also review and discuss cases from their own clinics, and answer questions from the audience regarding patient monitoring.

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Evolving Achondroplasia Care: Evolving MDT Over the Patient Lifetime

In this activity, Evolving Achondroplasia Care: Evolving MDT Over the Patient Lifetime, international experts review the key management considerations for a person with achondroplasia through the life stages. The faculty discuss the evolving role of the MDT through infancy, childhood, adolescence and adulthood in response to the needs of the patient and their family.

Understanding Achondroplasia Care: A Framework for Care

Listen to our faculty talk about the management of achondroplasia care across the globe. Here they will discuss the recommendations based on the recent publication, “International consensus statement on diagnosis, multidisciplinary management and life-long care for individuals with achondroplasia”.

Evolving Achondroplasia Care: Relationship Between Height and Quality of Life

Quality of life is an important health indicator in the context of the care of chronically ill patients. In this webinar our expert faculty explore the impact of quality of life on patients with achondroplasia, how best to interpret quality of life in chronic diseases as well as the importance of quality of life from a patient’s perspective. This webinar is for healthcare professionals only.