This website is intended for Healthcare Professionals in Europe, Canada, Australia and New Zealand only.

Expert Live

Join in live or follow up later, our webinars and symposiums aim to provide the latest information on achondroplasia. You can toggle the view to show either upcoming or past events and update your preferences in your account to be notified when we have a new event.

Webinar

Vosoritide▼: A year of data

The Vosoritide▼: A year of data webinar is now available to view on demand! This virtual event shares a review of the key vosoritide data presented in 2024, alongside a look ahead at what to expect in 2025. The webinar concluded with a discussion of what these updates mean for clinical practice.

Webinar

Vosoritide▼ in children <2 years of age: Real world experience and practical tips – Webinar

For those of you who were unable to join us for this engaging and informative case-based webinar, the recording is now available on-demand! This webinar aims to provide you with insights from leading clinicians on the practicalities of vosoritide in children <2 years of age, including multidisciplinary team management, neurological considerations within the first year of life, a real-world case study and practical support for parents and caregivers.

Expert Live

Achondroplasia Masterclass

Our expert editorial committee have identified essential areas of interest to ensure that our educational activities cater directly to the learning requirements of achondroplasia specialists. The aim of these videos are to support your professional growth and enhance your practice by delving into the dynamic landscape of achondroplasia management strategies.

Expert Live

ESPE 2023 Highlights Broadcast

NOW AVAILABLE ON-DEMAND! For those that were not able to attend or want to rewatch our ESPE broadcast featuring Professor Maghnie and Dr Hoyer-Kuhn discussing the latest data from the 2023 ESPE meeting held over 21-23 September, an on-demand version will be coming soon to Achondroplasia.expert.

Expert Live

Evolving Achondroplasia Care: Evolving MDT Over the Patient Lifetime

In this activity, Evolving Achondroplasia Care: Evolving MDT Over the Patient Lifetime, international experts review the key management considerations for a person with achondroplasia through the life stages. The faculty discuss the evolving role of the MDT through infancy, childhood, adolescence and adulthood in response to the needs of the patient and their family.

Expert Live

Understanding Achondroplasia Care: A Framework for Care

Listen to our faculty talk about the management of achondroplasia care across the globe. Here they will discuss the recommendations based on the recent publication, “International consensus statement on diagnosis, multidisciplinary management and life-long care for individuals with achondroplasia”.

Expert Live

Evolving Achondroplasia Care: Relationship Between Height and Quality of Life

Quality of life is an important health indicator in the context of the care of chronically ill patients. In this webinar our expert faculty explore the impact of quality of life on patients with achondroplasia, how best to interpret quality of life in chronic diseases as well as the importance of quality of life from a patient’s perspective. This webinar is for healthcare professionals only.