{"id":25,"date":"2022-11-03T18:35:42","date_gmt":"2022-11-03T18:35:42","guid":{"rendered":"https:\/\/achdsehcp-dev-001.azurewebsites.net\/en-us\/achondroplasia\/?page_id=25"},"modified":"2024-04-11T08:27:31","modified_gmt":"2024-04-11T08:27:31","slug":"recursos","status":"publish","type":"page","link":"https:\/\/hcp.biomarin.com\/pt-pt\/achondroplasia\/recursos\/","title":{"rendered":"Resources"},"content":{"rendered":"
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Biblioteca de recursos da acondroplasia\n<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t\t

Aprofunde os seus conhecimentos sobre acondroplasia<\/p>\n\t\t\t\t\t\t\t\t\n

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Mantenha-se atualizado com a evolu\u00e7\u00e3o da acondroplasia\n<\/h3>\n

Junte-se \u00e0 primeira comunidade digital para profissionais de sa\u00fade que visa facilitar a melhoria dos resultados cl\u00ednicos e da qualidade de vida de crian\u00e7as e adultos com acondroplasia<\/p>\n

Achondroplasia.expert<\/a><\/p>\n <\/div>\n<\/div>\n\n

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Recurso de cronograma de complica\u00e7\u00f5es\n<\/h3>\n

Uma revis\u00e3o abrangente das complica\u00e7\u00f5es comuns por faixa et\u00e1ria, incluindo sugest\u00f5es para monitoramento proativo, manejo e recomenda\u00e7\u00f5es de encaminhamento.<\/p>\n

Descarregue<\/a><\/p>\n <\/div>\n<\/div>\n\n

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Modelo de equipa de Cuidados Coordenados\n<\/h3>\n

Um recurso desenvolvido para ajud\u00e1-lo a iniciar uma conversa com pacientes e seus cuidadores sobre o estabelecimento de uma equipa multidisciplinar de especialistas.<\/p>\n

Descarregue<\/a><\/p>\n <\/div>\n<\/div>\n\n

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Ferramenta de Declara\u00e7\u00e3o de Consenso Internacional sobre Acondroplasia\n<\/h3>\n

Uma ferramenta para navegar na Declara\u00e7\u00e3o de Consenso Internacional sobre o Diagn\u00f3stico, Tratamento Multidisciplinar e Cuidados ao Longo da Vida de Indiv\u00edduos com Acondroplasia.<\/p>\n

Explore a ferramenta de consenso<\/a><\/p>\n <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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O que \u00e9 a acondroplasia?<\/h4>\n

Os especialistas em acondroplasia discutem o mecanismo da doen\u00e7a e as respetivas considera\u00e7\u00f5es de longo prazo<\/p>\n <\/div>\n \t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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Complica\u00e7\u00f5es das v\u00e1rias fases da vida<\/h4>\n

Ou\u00e7a os especialistas a descreverem as complica\u00e7\u00f5es da acondroplasia ao longo do tempo e o respetivo controlo atrav\u00e9s do modelo da equipa multidisciplinar<\/p>\n <\/div>\n \t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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Gest\u00e3o dos cuidados de sa\u00fade da acondroplasia\n<\/h4>\n \n

Os especialistas de cl\u00ednica geral podem ajudar a coordenar uma abordagem multidisciplinar aos cuidados a receber<\/p>\n \n <\/div>\n

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Saiba mais sobre o tratamento da acondroplasia<\/a><\/p>\n <\/div>\n<\/div>\n\n

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Complica\u00e7\u00f5es da acondroplasia\n<\/h4>\n \n

Podemos esperar complica\u00e7\u00f5es frequentes durante a vida de um doente<\/p>\n \n <\/div>\n

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Saiba mais sobre as complica\u00e7\u00f5es da acondroplasia<\/a><\/p>\n <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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Teste seu conhecimento\n<\/h2>\n\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t

Crian\u00e7as com acondroplasia s\u00f3 necessitam de cuidados m\u00e9dicos para problemas f\u00edsicos.<\/p>\n\t\t\t\t\t\n

\n \n Verdadeira\n <\/a>\n \n Falsa\n <\/a>\n <\/div>\n\t\t\t\t\t\n
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Enviar<\/a><\/p>\n <\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\n\t\t\t\t

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Voc\u00ea escolheu: %choice%\n<\/p>\n\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t

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Correta!\n<\/h2>\n \n

N\u00e3o \u00e9 isso \u2013 a resposta correta \u00e9 %answer%\n<\/h2>\n \n

As crian\u00e7as com acondroplasia tamb\u00e9m podem enfrentar desafios funcionais e psicossociais<\/strong>, especialmente quando entram na escola e fazem a transi\u00e7\u00e3o para a puberdade.1-3<\/sup><\/p>\n <\/div>\n

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\n Bibliograf\u00eda<\/a>\n <\/p>\n

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Fechar refer\u00eancias<\/a><\/p>\n

Bibliograf\u00eda:\n<\/h2>\n
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  1. Hoover-Fong J, Scott CI, Jones MC; COMMITTEE ON GENETICS. Health Supervision for People With Achondroplasia.\u202fPediatrics. 2020;145(6):e20201010. doi:10.1542\/peds.2020-1010.\n<\/span><\/li>\n
  2. Wright MJ, Irving MD. Clinical management of achondroplasia.\u202fArch Dis Child. 2012;97(2):129-134. doi:10.1136\/adc.2010.189092.\n<\/span><\/li>\n
  3. Ireland PJ, McGill J, Zankl A, et al. Functional performance in young Australian children with achondroplasia.\u202fDev Med Child Neurol. 2011;53(10):944-950.\n<\/span><\/li>\n <\/ol>\n <\/div>\n <\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t<\/div>\n <\/div>\n <\/div>\n<\/div>\n\n
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    Imprima esta p\u00e1gina<\/a><\/p>\n <\/div>\n <\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-25","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\nArtigos e fichas t\u00e9cnicas sobre acondroplasia | Recursos<\/title>\n<meta name=\"description\" content=\"Aprofunde seu conhecimento sobre acondroplasia com folhetos educacionais, planilhas, formul\u00e1rios de revis\u00e3o e muito mais para download.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/hcp.biomarin.com\/pt-pt\/achondroplasia\/recursos\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" 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