{"id":21,"date":"2022-11-03T18:34:48","date_gmt":"2022-11-03T18:34:48","guid":{"rendered":"https:\/\/achdsehcp-dev-001.azurewebsites.net\/en-us\/achondroplasia\/?page_id=21"},"modified":"2024-04-16T15:59:14","modified_gmt":"2024-04-16T15:59:14","slug":"manejo-e-acompanhamento","status":"publish","type":"page","link":"https:\/\/hcp.biomarin.com\/pt-br\/achondroplasia\/manejo-e-acompanhamento\/","title":{"rendered":"Manejo e Acompanhamento"},"content":{"rendered":"
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O cuidado da acondroplasia come\u00e7a com voc\u00ea, profissional de sa\u00fade\n<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t\t

Pais, cuidadores e indiv\u00edduos com acondroplasia podem precisar de uma comunidade m\u00e9dica forte desde o primeiro dia1<\/sup><\/p>\n\t\t\t\t\t\t\t\t\n

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A acondroplasia resulta em complica\u00e7\u00f5es multissist\u00eamicas que precisam de uma equipe multidisciplinar familiarizada com as melhores pr\u00e1ticas de seu tratamento.<\/h2>\n

Para garantir a coordena\u00e7\u00e3o do tratamento, \u00e9 importante que pais, cuidadores e pacientes contem com um especialista confi\u00e1vel no centro do seu tratamento.1-5<\/sup><\/p>\n <\/div>\n\n

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Teste o seu conhecimento\n<\/h2>\n\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t

Por ser fator de risco para morte s\u00fabita, a compress\u00e3o cervicomedular deve ser monitorada atentamente em quais faixas et\u00e1rias?<\/p>\n\t\t\t\t\t\n

\n \n Crian\u00e7as (5-14 anos) e Adultos (18 ou mais anos)\n <\/a>\n \n Lactentes (nascimento – 2 anos) e Crian\u00e7as na primeira inf\u00e2ncia (3-4 anos)\n <\/a>\n \n Crian\u00e7as (5-14 anos) e Adolescentes (14-18 anos)\n <\/a>\n \n Adolescentes (14-18 anos) e adultos (18 ou mais anos)\n <\/a>\n <\/div>\n\t\t\t\t\t\n
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Enviar<\/a><\/p>\n <\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\n\t\t\t\t

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Voc\u00ea escolheu: %choice%\n<\/p>\n\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t

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Correto!\n<\/h2>\n \n

N\u00e3o est\u00e1 correto – a resposta correta \u00e9 %answer%\n<\/h2>\n \n

Beb\u00eas e crian\u00e7as pequenas correm um risco maior de morte s\u00fabita devido \u00e0 compress\u00e3o cervicomedular no forame magno e as crian\u00e7as com acondroplasia enfrentam complica\u00e7\u00f5es m\u00fasculo-esquel\u00e9ticas, otorrinolaringol\u00f3gicas, neurol\u00f3gicas e espinhais – algumas das quais podem necessitar de cirurgia.1-3<\/sup><\/p>\n <\/div>\n

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\n Refer\u00eancias<\/a>\n <\/p>\n

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Close references<\/a><\/p>\n

Refer\u00eancias:\n<\/h2>\n
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  1. Pauli RM. Achondroplasia: a comprehensive clinical review.\u202fOrphanet J Rare Dis. 2019;14(1):1. Published 2019 Jan 3. doi:10.1186\/s13023-018-0972-6.\n<\/span><\/li>\n
  2. Wynn J, King TM, Gambello MJ, Waller DK, Hecht JT. Mortality in achondroplasia study: a 42-year follow-up.\u202fAm J Med Genet A. 2007;143A(21):2502-2511. doi:10.1002\/ajmg.a.31919.\n<\/span><\/li>\n
  3. Ednick M, Tinkle BT, Phromchairak J, Egelhoff J, Amin R, Simakajornboon N. Sleep-related respiratory abnormalities and arousal pattern in achondroplasia during early infancy.\u202fJ Pediatr. 2009;155(4):510-515. doi:10.1016\/j.jpeds.2009.04.031.\n<\/span><\/li>\n <\/ol>\n <\/div>\n <\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t<\/div>\n <\/div>\n <\/div>\n<\/div>\n\n
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    Refer\u00eancias:\n<\/h4>\n\t\t\t\t\t\t
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    1. Hoover-Fong J, Scott CI, Jones MC; Committee on Genetics. Health supervision for people with achondroplasia. Pediatrics<\/em>. 2020;145(6):e20201010.\n<\/span><\/li>\n
    2. Ireland PJ, Pacey V, Zankl A, Edwards P, Johnston LM, Savarirayan R. Optimal management of complications associated with achondroplasia. Appl Clin Genet<\/em>em. 2014;7:117-125. Published online June 24, 2014. \n<\/span><\/li>\n
    3. Hunter AG, Bankier A, Rogers JG, Sillence D, Scott CI Jr. Medical complications of achondroplasia: a multicentre patient review. J Med Genet<\/em>. 1998;35(9):705-712. \n<\/span><\/li>\n
    4. Wright MJ, Irving MD. Clinical management of achondroplasia. Arch Dis Child<\/em>. 2012;97(2):129-134. \n<\/span><\/li>\n
    5. Unger S, Bonaf\u00e9 L, Gouze E. Current care and investigational therapies in achondroplasia. Curr Osteoporos Rep<\/em>. 2017;15(2):53-60.\n<\/span><\/li>\n <\/ol>\n\t\t\t\t\t<\/div>\n\t<\/div>\n<\/div>\n\n
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      Imprima esta p\u00e1gina<\/a><\/p>\n <\/div>\n <\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-21","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\nAcondroplasia | Manejo e Acompanhamento<\/title>\n<meta name=\"description\" content=\"A acondroplasia resulta em complica\u00e7\u00f5es multissist\u00eamicas que precisam de uma equipe multidisciplinar familiarizada com as melhores pr\u00e1ticas de seu tratamento.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/hcp.biomarin.com\/pt-br\/achondroplasia\/manejo-e-acompanhamento\/\" \/>\n<meta property=\"og:locale\" content=\"pt_BR\" \/>\n<meta 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