{"id":25,"date":"2022-11-03T18:35:42","date_gmt":"2022-11-03T18:35:42","guid":{"rendered":"https:\/\/achdsehcp-dev-001.azurewebsites.net\/en-us\/achondroplasia\/?page_id=25"},"modified":"2024-03-19T14:44:17","modified_gmt":"2024-03-19T14:44:17","slug":"ressources","status":"publish","type":"page","link":"https:\/\/hcp.biomarin.com\/fr-fr\/achondroplasia\/ressources\/","title":{"rendered":"Resources"},"content":{"rendered":"
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Centre de ressources sur l’achondroplasie\n<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t\t

Renforcez vos connaissances sur l\u2019achondroplasie<\/p>\n\t\t\t\t\t\t\t\t\n

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Ressource sur la chronologie des complications\n<\/h3>\n

Un examen complet des complications courantes par groupe d’\u00e2ge, y compris des suggestions pour la surveillance proactive, la prise en charge et les recommandations d’orientation.<\/p>\n

T\u00e9l\u00e9charger<\/a><\/p>\n <\/div>\n<\/div>\n\n

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Feuille de travail de l’\u00e9quipe de soins pluridisciplinaire\n<\/h3>\n

Une ressource con\u00e7ue pour vous aider \u00e0 initier une conversation avec les patients et leurs aidants sur la cr\u00e9ation d’une \u00e9quipe de soins multidisciplinaire de sp\u00e9cialistes.<\/p>\n

T\u00e9l\u00e9charger<\/a><\/p>\n <\/div>\n<\/div>\n\n

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Outil sur la d\u00e9claration de consensus international sur l’achondroplasie\n<\/h3>\n

Un outil pour naviguer dans la D\u00e9claration de consensus international sur le diagnostic, la prise en charge multidisciplinaire et les soins tout au long de la vie des personnes atteintes d’achondroplasie.<\/p>\n

Explorer l’outil de consensus<\/a><\/p>\n <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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Qu’est-ce que l’achondroplasie ?<\/h4>\n

Les sp\u00e9cialistes de l’achondroplasie \u00e9voquent le m\u00e9canisme qui est \u00e0 l’origine de la maladie et son impact \u00e0 long terme<\/p>\n <\/div>\n \t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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Complications aux diff\u00e9rents \u00e2ges de la vie<\/h4>\n

Des sp\u00e9cialistes d\u00e9crivent les complications li\u00e9es \u00e0 l’achondroplasie \u00e0 tous les \u00e2ges et leur prise en charge par le biais d’une \u00e9quipe pluridisciplinaire<\/p>\n <\/div>\n \t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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G\u00e9rer l’achondroplasie\n<\/h4>\n \n

Les professionnels en charge des soins primaires peuvent aider \u00e0 coordonner une approche multidisciplinaire des soins<\/p>\n \n <\/div>\n

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En savoir plus sur la gestion de l’achondroplasie<\/a><\/p>\n <\/div>\n<\/div>\n\n

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Complications de l’achondroplasie\n<\/h4>\n \n

Des complications courantes peuvent \u00eatre attendues tout au long de la vie d’un individu<\/p>\n \n <\/div>\n

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En savoir plus sur les complications de l’achondroplasie<\/a><\/p>\n <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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Testez vos connaissances\n<\/h2>\n\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t

Les enfants atteints d’achondroplasie n’ont besoin de soins m\u00e9dicaux que pour des probl\u00e8mes physiques.<\/p>\n\t\t\t\t\t\n

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Soumettre<\/a><\/p>\n <\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\n\t\t\t\t

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Votre choix: %choice%\n<\/p>\n\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t

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C’est exact !\n<\/h2>\n \n

Incorrect – La bonne r\u00e9ponse est %answer%\n<\/h2>\n \n

Les enfants atteints d’achondroplasie peuvent \u00e9galement \u00eatre confront\u00e9s \u00e0 des d\u00e9fis fonctionnels et psychosociaux, en particulier lorsqu’ils entrent \u00e0 l’\u00e9cole et commencent leur pubert\u00e9.1-3<\/sup><\/p>\n <\/div>\n

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\n R\u00e9f\u00e9rences<\/a>\n <\/p>\n

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Fermer les r\u00e9f\u00e9rences<\/a><\/p>\n

R\u00e9f\u00e9rences :\n<\/h2>\n
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  1. Hoover-Fong J, Scott CI, Jones MC; COMMITTEE ON GENETICS. Health Supervision for People With Achondroplasia.\u202fPediatrics. 2020;145(6):e20201010. doi:10.1542\/peds.2020-1010.\n<\/span><\/li>\n
  2. Wright MJ, Irving MD. Clinical management of achondroplasia.\u202fArch Dis Child. 2012;97(2):129-134. doi:10.1136\/adc.2010.189092.\n<\/span><\/li>\n
  3. Ireland PJ, McGill J, Zankl A, et al. Functional performance in young Australian children with achondroplasia.\u202fDev Med Child Neurol. 2011;53(10):944-950.\n<\/span><\/li>\n <\/ol>\n <\/div>\n <\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t<\/div>\n <\/div>\n <\/div>\n<\/div>\n\n
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    Imprimer cette page<\/a><\/p>\n <\/div>\n <\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":4,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-25","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\nArticles et fiches d'information sur l'achondroplasie | Ressources<\/title>\n<meta name=\"description\" content=\"Approfondissez vos connaissances sur l'achondroplasie avec des brochures \u00e9ducatives t\u00e9l\u00e9chargeables, des feuilles de travail, des formulaires de r\u00e9vision et plus encore.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/hcp.biomarin.com\/fr-fr\/achondroplasia\/ressources\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" 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