{"id":21,"date":"2022-11-03T18:34:48","date_gmt":"2022-11-03T18:34:48","guid":{"rendered":"https:\/\/achdsehcp-dev-001.azurewebsites.net\/en-us\/achondroplasia\/?page_id=21"},"modified":"2024-09-03T11:17:19","modified_gmt":"2024-09-03T11:17:19","slug":"manejo","status":"publish","type":"page","link":"https:\/\/hcp.biomarin.com\/es-la\/achondroplasia\/manejo\/","title":{"rendered":"Manejo"},"content":{"rendered":"<div id=\"medical-home\" class=\"hero hero-no-overlay\">\n            <div class=\"hero-background-image hero-background-image-desktop\" style=\"background-image: url(https:\/\/hcp.biomarin.com\/es-la\/achondroplasia\/wp-content\/uploads\/sites\/12\/2022\/11\/management_hero.jpg?v=0.122);\"><\/div>\n\t    <div class=\"hero-background-image hero-background-image-mobile\" style=\"background-image: url(https:\/\/hcp.biomarin.com\/es-la\/achondroplasia\/wp-content\/uploads\/sites\/12\/2022\/11\/management_hero.jpg?v=0.122);\"><\/div>\n    \t<div class=\"overlay\"><\/div>\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"hero-content\">\n\t\t\t    \t\t\t\t\t\t\t\t\t\t\t\t    <h1>El apoyo a la acondroplasia comienza con usted\n<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t\t    <p>Los padres, cuidadores y personas con acondroplasia pueden necesitar una comunidad m\u00e9dica s\u00f3lida desde el primer d\u00eda<sup>1<\/sup><\/p>\n\t\t\t\t\t\t\t\t\n                <p class=\"inline-buttons\">\n                                                        <\/p>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n\n<div id=\"acf-block-6425cdeccc222\" class=\"block wrapped-content\">\n    <div class=\"wrapper\">\n        <div class=\"inner-wrapper\">\n                \n<div id=\"acf-block-64255ff01debd\" class=\"block-wysiwyg\">\n            <h2>La acondroplasia produce complicaciones multisist\u00e9micas<\/h2>\n<p>La gesti\u00f3n requiere un equipo multidisciplinario familiarizado con las mejores pr\u00e1cticas. Para garantizar la coordinaci\u00f3n de la atenci\u00f3n, es importante que los padres, cuidadores y pacientes tengan un experto confiable en el centro de su atenci\u00f3n<sup>1-5<\/sup>.<\/p>\n    <\/div>\n\n<figure id=\"acf-block-64255ff01ded6\">\n    <div class=\"image image-rounded image-align-left\">\n                    <img decoding=\"async\" class=\"\" src=\"https:\/\/hcp.biomarin.com\/es-la\/achondroplasia\/wp-content\/uploads\/sites\/12\/2024\/08\/management_graphic-ES-US-2.svg\" alt=\"\" \/>            <\/div>\n    <\/figure>\n        <\/div>\n    <\/div>\n<\/div>\n\n<div id=\"acf-block-64255ff01fcd0\" class=\"block boxed-content quiz block-tight-top block-tight-bottom\">\n    <div class=\"wrapper\">\n        <div class=\"inner-wrapper\">\n            <div class=\"box\">\n\t\t\t\t<div class=\"quiz-question\">\n                    \t\t\t\t\t    <h2>Pruebe sus conocimientos\n<\/h2>\n\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t    <p>Debido a que es un factor de riesgo de muerte s\u00fabita, \u00bfen qu\u00e9 grupos de edad se debe monitorear de cerca la compresi\u00f3n cervicomedular?<\/p>\n\t\t\t\t\t\n                                            <div class=\"quiz-question-responses\">\n                                                                                                                                                            <a class=\"button button-ghost\" href=\"#\" data-correct-answer=\"false\">\n                                    Ni\u00f1o (5-14 a\u00f1os) y adulto (18+ a\u00f1os)\n                                <\/a>\n                                                                                                                                                            <a class=\"button button-ghost\" href=\"#\" data-correct-answer=\"true\">\n                                    Lactantes (nacimiento-2 an\u00f5s) y ni\u00f1os (3-4 a\u00f1os)\n                                <\/a>\n                                                                                                                                                            <a class=\"button button-ghost\" href=\"#\" data-correct-answer=\"false\">\n                                    Ni\u00f1os (5-14 a\u00f1os) y Adolescente (14-18 a\u00f1os)\n                                <\/a>\n                                                                                                                                                            <a class=\"button button-ghost\" href=\"#\" data-correct-answer=\"false\">\n                                    Adolescente (14-18 a\u00f1os) y adulto (18+ a\u00f1os)\n                                <\/a>\n                                                    <\/div>\n\t\t\t\t\t\n                                            <div class=\"quiz-question-submit\">\n                            <p><a class=\"button\" href=\"#\">Enviar<\/a><\/p>\n                        <\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\n\t\t\t\t<div class=\"quiz-answer\" style=\"display:none;\">\n\t\t\t\t    \t\t\t\t        \t\t\t\t\t    <p class=\"quiz-answer-choice\">Usted elegi\u00f3: %choice%\n<\/p>\n\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t    <div class=\"split-content\">\n                            <div class=\"wrapper\">\n                                <div class=\"inner-wrapper\">\n                                    <div class=\"content-block\">\n                                                                                    <h2 class=\"correct\" style=\"display:none;\">\u00a1As\u00ed es!\n<\/h2>\n                                        \n                                                                                    <h2 class=\"incorrect\" style=\"display:none;\">Incorrecto &#8211; La respuesta correcta es %answer%\n<\/h2>\n                                        \n                                                                                    <p>Los beb\u00e9s y ni\u00f1os peque\u00f1os tienen un mayor riesgo de muerte s\u00fabita debido a la compresi\u00f3n cervicomedular en el foramen magnum y los ni\u00f1os con acondroplasia enfrentan complicaciones musculoesquel\u00e9ticas, otorrinolaringol\u00f3gicas, neurol\u00f3gicas y espinales, algunas de las cuales pueden requerir cirug\u00eda.<sup>1-3<\/sup><\/p>\n                                                                            <\/div>\n                                    <div class=\"content-block\">\n                                                                                    <figure>\n                                                <div class=\"image\">\n                                                    <img decoding=\"async\" class=\"\" src=\"https:\/\/hcp.biomarin.com\/es-la\/achondroplasia\/wp-content\/uploads\/sites\/12\/2023\/03\/Screenshot_2023-03-30_at_11.04.11-removebg-preview-1.png?v=0.122\" alt=\"\" \/>                                                <\/div>\n                                            <\/figure>\n                                                                            <\/div>\n                                <\/div>\n                            <\/div>\n                        <\/div>\n\t\t\t\t\t\n\t\t\t\t\t                        <p class=\"references\">\n                            <a class=\"quiz-references-modal\" href=\"#quiz-references-modal\">Referencia<\/a>\n                        <\/p>\n                        <div id=\"quiz-references-modal\" class=\"quiz-references white-popup-block mfp-hide\">\n                            <div class=\"box references\">\n                                <p><a class=\"modal-close\" href=\"#\">Close references<\/a><\/p>\n                                                                    <h2>Referencia:\n<\/h2>\n                                                                <ol>\n                                                                                                                                                                                                        <li><span>Pauli RM. Achondroplasia: a comprehensive clinical review.\u202fOrphanet J Rare Dis. 2019;14(1):1. Published 2019 Jan 3. doi:10.1186\/s13023-018-0972-6.\n<\/span><\/li>\n                                                                                                                                                                                                                                                <li><span>Wynn J, King TM, Gambello MJ, Waller DK, Hecht JT. Mortality in achondroplasia study: a 42-year follow-up.\u202fAm J Med Genet A. 2007;143A(21):2502-2511. doi:10.1002\/ajmg.a.31919.\n<\/span><\/li>\n                                                                                                                                                                                                                                                <li><span>Ednick M, Tinkle BT, Phromchairak J, Egelhoff J, Amin R, Simakajornboon N. Sleep-related respiratory abnormalities and arousal pattern in achondroplasia during early infancy.\u202fJ Pediatr. 2009;155(4):510-515. doi:10.1016\/j.jpeds.2009.04.031.\n<\/span><\/li>\n                                                                                                            <\/ol>\n                            <\/div>\n                        <\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t<\/div>\n        <\/div>\n    <\/div>\n<\/div>\n\n<div id=\"acf-block-64255ff01fd20\" class=\"block references\">\n    <div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t    \t\t\t    <h4>Referencia:\n<\/h4>\n\t\t\t\t\t\t                <ol>\n                                                                                                                        <li><span>Hoover-Fong J, Scott CI, Jones MC; Committee on Genetics. Health supervision for people with achondroplasia. <em>Pediatrics<\/em>. 2020;145(6):e20201010.\n<\/span><\/li>\n                                                                                                                                                <li><span>Ireland PJ, Pacey V, Zankl A, Edwards P, Johnston LM, Savarirayan R. Optimal management of complications associated with achondroplasia. <em>Appl Clin Genet<\/em>em. 2014;7:117-125. Published online June 24, 2014.\n<\/span><\/li>\n                                                                                                                                                <li><span>Hunter AG, Bankier A, Rogers JG, Sillence D, Scott CI Jr. Medical complications of achondroplasia: a multicentre patient review. <em>J Med Genet<\/em>. 1998;35(9):705-712.\n<\/span><\/li>\n                                                                                                                                                <li><span>Wright MJ, Irving MD. Clinical management of achondroplasia. <em>Arch Dis Child<\/em>. 2012;97(2):129-134.\n<\/span><\/li>\n                                                                                                                                                <li><span>Unger S, Bonaf\u00e9 L, Gouze E. Current care and investigational therapies in achondroplasia. <em>Curr Osteoporos Rep<\/em>. 2017;15(2):53-60.\n<\/span><\/li>\n                                                            <\/ol>\n\t\t\t\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-64255ff01fed7\" class=\"block print-page\">\n    <div class=\"wrapper\">\n        <div class=\"inner-wrapper\">\n            <p><a class=\"button button-print\" href=\"#\">Imprima esta p\u00e1gina<\/a><\/p>\n        <\/div>\n    <\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-21","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Grupos de apoyo, 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