{"id":847,"date":"2023-01-12T07:10:10","date_gmt":"2023-01-12T07:10:10","guid":{"rendered":"https:\/\/pkudsehcp-dev-001.azurewebsites.net\/en-us\/phenylketonuria\/?page_id=847"},"modified":"2025-04-16T22:53:10","modified_gmt":"2025-04-16T22:53:10","slug":"hcp-resources","status":"publish","type":"page","link":"https:\/\/hcp.biomarin.com\/en-us\/pku\/hcp-resources\/","title":{"rendered":"Resources"},"content":{"rendered":"<div id=\"acf-block-63f651fa98b8e\" class=\"hero hero-no-overlay\">\n            <div class=\"hero-background-image hero-background-image-desktop\" style=\"background-image: url(https:\/\/hcp.biomarin.com\/en-us\/pku\/wp-content\/uploads\/sites\/2\/2023\/01\/PKU_Tree_DSE_Website_Interior_2022_v1_RGB_FIN.jpg?v=0.89);\"><\/div>\n\t    <div class=\"hero-background-image hero-background-image-mobile\" style=\"background-image: url(https:\/\/hcp.biomarin.com\/en-us\/pku\/wp-content\/uploads\/sites\/2\/2023\/03\/hero-815x800.jpg);\"><\/div>\n    \t<div class=\"overlay\"><\/div>\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"hero-content\">\n\t\t\t    \t\t\t\t\t\t\t\t\t\t\t\t    <h1>Resources for PKU Healthcare Providers\n<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t\t\n                <p class=\"inline-buttons\">\n                                                        <\/p>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n\n<div id=\"acf-block-65e0619532950\" class=\"block boxed-content boxed-content-white\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"box\">\n\t\t\t\t                    <h2>Patient Advocacy Groups\n<\/h2>\n                \t\t\t\t\n<div id=\"acf-block-65e0619532ebf\" class=\"image-text-block content-align-center bottom-border\">\n        <div class=\"content-block\">\n                    <h3>Flok.org\n<\/h3>\n                            <p>An organization dedicated to rallying the inherited metabolic disorder community to continuously improve our care and accelerate scientific progress.<\/p>\n                                            <p><a class=\"button button-text button-arrow\" href=\"https:\/\/www.flok.org\" target=\"_blank\">flok.org<\/a><\/p>\n                        <\/div>\n<\/div>\n\n<div id=\"acf-block-65e0619532f8d\" class=\"image-text-block content-align-center block-zero-bottom\">\n        <div class=\"content-block\">\n                    <h3>National PKU Alliance (NPKUA)\n<\/h3>\n                            <p>The NPKUA is a collaboration of phenylketonuria (PKU) community members joining together as a national voice and supporting local efforts to raise phenylketonuria (PKU) awareness and drive advocacy and education, while ultimately looking for a cure.<\/p>\n                                            <p><a class=\"button button-text button-arrow\" href=\"https:\/\/www.npkua.org\" target=\"_blank\">npkua.org<\/a><\/p>\n                        <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-664394434a035\" class=\"block wrapped-content bg-band bg-band-primary block-zero-top block-zero-bottom\">\n    <div class=\"wrapper\">\n        <div class=\"inner-wrapper\">\n                \n<div id=\"acf-block-664394434a1c9\" class=\"block-wysiwyg\">\n            <h3>There are many Patient Advocacy Groups and institutes available to support patients with PKU. Check for more in your area.<\/h3>\n    <\/div>\n        <\/div>\n    <\/div>\n<\/div>\n\n<div id=\"acf-block-65e066c2cb174\" class=\"block boxed-content block-zero-top boxed-content-alt\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"box\">\n\t\t\t\t                    <h2>Summary of Key Publications\n<\/h2>\n                \t\t\t\t\n<div id=\"acf-block-65e066c2cb60e\" class=\"image-text-block content-align-center bottom-border\">\n        <div class=\"content-block\">\n                    <h3>Relationship Between Elevated Phe and Neuropsychiatric Symptoms and Cognitive Deficits in Adults With PKU\n<\/h3>\n                                                    <p><a class=\"button button-download\" href=\"https:\/\/hcp.biomarin.com\/en-us\/pku\/wp-content\/uploads\/sites\/2\/2023\/05\/PKU-HCP-Publication-Summary-1.pdf?v=0.72\" target=\"_blank\">Download<\/a><\/p>\n                        <\/div>\n<\/div>\n\n<div id=\"acf-block-65e0674380d51\" class=\"image-text-block content-align-center\">\n        <div class=\"content-block\">\n                    <h3>Expert Panel Provides Strategic Recommendations for Managing Adolescents and Young Adults With PKU\n<\/h3>\n                                                    <p><a class=\"button button-download\" href=\"https:\/\/hcp.biomarin.com\/en-us\/pku\/wp-content\/uploads\/sites\/2\/2023\/05\/PKU-HCP-Publication-Summary-2.pdf?v=0.72\" target=\"_blank\">Download<\/a><\/p>\n                        <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-847","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Phenylketonuria (PKU) Associations and Resources<\/title>\n<meta name=\"description\" content=\"There are many Patient Advocacy Groups and institutes available to support patients with phenylketonuria (PKU). 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