{"id":447,"date":"2023-01-11T14:44:58","date_gmt":"2023-01-11T14:44:58","guid":{"rendered":"https:\/\/pkudsehcp-dev-001.azurewebsites.net\/en-us\/phenylketonuria\/?page_id=447"},"modified":"2023-06-20T16:53:35","modified_gmt":"2023-06-20T16:53:35","slug":"patient-stories","status":"publish","type":"page","link":"https:\/\/hcp.biomarin.com\/en-us\/pku\/patient-stories\/","title":{"rendered":"Patient Stories"},"content":{"rendered":"<div id=\"acf-block-63f64e3ba36c9\" class=\"hero hero-no-overlay\">\n            <div class=\"hero-background-image hero-background-image-desktop\" style=\"background-image: url(https:\/\/hcp.biomarin.com\/en-us\/pku\/wp-content\/uploads\/sites\/2\/2023\/06\/new-pku-internal-hero-2.jpg?v=0.85);\"><\/div>\n\t    <div class=\"hero-background-image hero-background-image-mobile\" style=\"background-image: url(https:\/\/hcp.biomarin.com\/en-us\/pku\/wp-content\/uploads\/sites\/2\/2023\/03\/hero-815x800.jpg);\"><\/div>\n    \t<div class=\"overlay\"><\/div>\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"hero-content\">\n\t\t\t    \t\t\t\t\t\t\t\t\t\t\t\t    <h1>The everyday struggles <br \/>of living with phenylketonuria\n<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n    <div class=\"hero-footer\">\n        <div class=\"wrapper\">\n            <div class=\"inner-wrapper\">\n                <p>Listen to patients with phenylketonuria (PKU) and their families<\/p>\n            <\/div>\n        <\/div>\n    <\/div>\n\n\n<div id=\"acf-block-63f64e3ba3799\" class=\"block split-content block-tight-bottom\" data-muted-autoplay=\"false\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t                                                                <div class=\"content-block\">\n                                                                                                                                                                                                                                                <div class=\"video-poster\">\n\t\t\t                            <a class=\"modal-video permitted\" href=\"https:\/\/player.vimeo.com\/video\/834483784?autoplay=1\" style=\"background-image: url(https:\/\/hcp.biomarin.com\/en-us\/pku\/wp-content\/uploads\/sites\/2\/2023\/04\/Kelly-Thumbnail--1500x871.jpg);\">Play<\/a>\n\t\t                            <\/div>\n\t\t                                                                            <\/div>\n                    \n                                            <div class=\"content-block\">\n                                                                                                <p><strong>Kelly: Loss of Phe Control<\/strong><\/p>\n<p>Learn how a strong support system helped Kelly return to clinic.<\/p>\n                                                                                                                                                                                                                                                                                                                                                                                            <p><a class=\"button button-download\" href=\"https:\/\/hcp.biomarin.com\/en-us\/pku\/wp-content\/uploads\/sites\/2\/2023\/06\/Kelly-PKU-Video-Transcript.pdf?v=0.85\" target=\"_blank\">View transcript<\/a><\/p>\n                                                                                    <\/div>\n                                                \t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-63f64e3ba37ca\" class=\"block split-content\" data-muted-autoplay=\"false\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t                                                                <div class=\"content-block\">\n                                                                                                                                                                                                                                                <div class=\"video-poster\">\n\t\t\t                            <a class=\"modal-video permitted\" href=\"https:\/\/player.vimeo.com\/video\/834483510?autoplay=1\" style=\"background-image: url(https:\/\/hcp.biomarin.com\/en-us\/pku\/wp-content\/uploads\/sites\/2\/2023\/04\/Eric-Thumbnail--1500x925.jpg);\">Play<\/a>\n\t\t                            <\/div>\n\t\t                                                                            <\/div>\n                    \n                                            <div class=\"content-block\">\n                                                                                                <p><strong>Eric: PKU Diet Challenges<\/strong><\/p>\n<p>Hear how Eric overcame PKU diet challenges and got back to a new kind of PKU care.<\/p>\n                                                                                                                                                                                                                                                                                                                                                                                            <p><a class=\"button button-download\" href=\"https:\/\/hcp.biomarin.com\/en-us\/pku\/wp-content\/uploads\/sites\/2\/2023\/06\/Eric-PKU-Video-Transcript.pdf?v=0.85\" target=\"_blank\">View transcript<\/a><\/p>\n                                                                                    <\/div>\n                                                \t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-63f64e3ba3806\" class=\"block split-content block-tight-top\" data-muted-autoplay=\"false\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t                                                                <div class=\"content-block\">\n                                                                                                                                                                                                                                                <div class=\"video-poster\">\n\t\t\t                            <a class=\"modal-video permitted\" href=\"https:\/\/player.vimeo.com\/video\/834482531?autoplay=1\" style=\"background-image: url(https:\/\/hcp.biomarin.com\/en-us\/pku\/wp-content\/uploads\/sites\/2\/2023\/04\/Connie-Thumbnail--1500x921.jpg);\">Play<\/a>\n\t\t                            <\/div>\n\t\t                                                                            <\/div>\n                    \n                                            <div class=\"content-block\">\n                                                                                                <p><strong>Connie: Learning to Focus on Herself <\/strong><\/p>\n<p>See how returning to clinic after 50 years helped Connie achieve the lowest Phe levels of her life.<\/p>\n                                                                                                                                                                                                                                                                                                                                                                                            <p><a class=\"button button-download\" href=\"https:\/\/hcp.biomarin.com\/en-us\/pku\/wp-content\/uploads\/sites\/2\/2023\/06\/Connie-PKU-Video-Transcript.pdf?v=0.85\" target=\"_blank\">View transcript<\/a><\/p>\n                                                                                    <\/div>\n                                                \t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-63f64e3ba381f\" class=\"block wrapped-content block-tight-bottom\">\n    <div class=\"wrapper\">\n        <div class=\"inner-wrapper\">\n                \n<div id=\"acf-block-63f64e3ba382f\" class=\"block-wysiwyg\">\n            <h2>Learn more about PKU<\/h2>\n    <\/div>\n        <\/div>\n    <\/div>\n<\/div>\n\n<div id=\"acf-block-63f64e3ba3845\" class=\"block cards cards-2-col block-tight-top block-tight-bottom\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"cards-title\">\n\t\t\t    \t\t\t\t\t\t\t<\/div>\n\t\t\t<div class=\"cards-wrapper\">\n\t\t\t    \n<div id=\"acf-block-63f64e3ba5222\" class=\"card card-product card-fixed-button\" data-muted-autoplay=\"false\">\n    \t    <img decoding=\"async\" class=\"\" src=\"https:\/\/hcp.biomarin.com\/en-us\/pku\/wp-content\/uploads\/sites\/2\/2023\/01\/management_icon_v2.svg\" alt=\"PKU management options icon\" \/>\t    <div class=\"card-content\">\n                            <h4>Know your PKU management options\n<\/h4>\n        \n                                                                                                                                                                                                                                                                                    \n                                                                                        <\/div>\n                                <div class=\"card-actions\">\n                            \n                            <p><a class=\"button\" href=\"https:\/\/hcp.biomarin.com\/en-us\/pku\/pku-management-options\/\" target=\"_self\">View PKU options<\/a><\/p>\n                                                                                    <\/div>\n<\/div>\n\n<div id=\"acf-block-63f64e3ba52c4\" class=\"card card-product card-fixed-button\" data-muted-autoplay=\"false\">\n    \t    <img decoding=\"async\" class=\"\" src=\"https:\/\/hcp.biomarin.com\/en-us\/pku\/wp-content\/uploads\/sites\/2\/2023\/01\/adult_pku_icon_new.svg\" alt=\"Adult challenges in PKU icon\" \/>\t    <div class=\"card-content\">\n                            <h4>Understand the challenges of PKU\n<\/h4>\n        \n                                                                                                                                                                                                                                                                                    \n                                                                                        <\/div>\n                                <div class=\"card-actions\">\n                            \n                            <p><a class=\"button\" href=\"https:\/\/hcp.biomarin.com\/en-us\/pku\/pku-challenges\/\" target=\"_self\">Learn more<\/a><\/p>\n                                                                                    <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"connect-with-us\" class=\"block hcp-sign-up-form\">\n    <div class=\"wrapper\">\n        <div class=\"inner-wrapper\">\n                            <h2>Stay connected with the latest PKU information\n<\/h2>\n                        <div class=\"block form-box\">\n                                    <p>Register below to connect with a BioMarin representative, learn about upcoming PKU events and news, or request a peer-to-peer discussion.<\/p>\n<p>* Required fields<\/p>\n                \n                <form id=\"hcp-sign-up\" name=\"Stay connected with the latest PKU information\">\n                    <div class=\"form-item\">\n                        <label for=\"first-name\">First name<span class=\"required\">*<\/span><\/label>\n                        <input class=\"text\" id=\"first-name\" type=\"text\" required\n                        data-pristine-required-message=\"Please enter your first name.\">\n                    <\/div>\n\n                    <div class=\"form-item\">\n                        <label for=\"last-name\">Last name<span class=\"required\">*<\/span><\/label>\n                        <input class=\"text\" id=\"last-name\" type=\"text\" required\n                        data-pristine-required-message=\"Please enter your last name.\">\n                    <\/div>\n\n                    <div class=\"form-item\">\n                        <label for=\"email\">Email address<span class=\"required\">*<\/span><\/label>\n                        <input class=\"text\" id=\"email\" type=\"email\" required\n                        data-pristine-required-message=\"Please enter your email address.\">\n                    <\/div>\n\n                    <div class=\"form-item\">\n                        <label for=\"phone-number\">Phone number<\/label>\n                        <input class=\"text\" id=\"phone-number\" type=\"text\"\n                        data-pristine-required-message=\"Please enter your phone number.\"\n                        data-pristine-pattern-message=\"Please enter a valid phone number.\"\n                        data-pristine-pattern=\"\/^\\(?([0-9]{3})\\)?[-. ]?([0-9]{3})[-. ]?([0-9]{4})$\/\">\n                    <\/div>\n\n                    <div class=\"form-item\">\n                        <label for=\"zip-code\">Postal Code<span class=\"required\">*<\/span><\/label>\n                        <input class=\"text\" id=\"zip-code\" type=\"text\" required\n                        data-pristine-required-message=\"Please enter your ZIP code.\"\n                        data-pristine-pattern-message=\"Please enter a valid ZIP code.\"\n                        data-pristine-pattern=\"\/^\\d{5}(-\\d{4})?$\/i\">\n                    <\/div>\n\n                    <div class=\"form-item\">\n                        <label for=\"medical-speciality\">What best describes you?<span class=\"required\">*<\/span><\/label>\n                        <select class=\"text\" id=\"medical-speciality\" required\n                        data-pristine-required-message=\"Please select your medical specialty.\">\n                            <option value=\"\">Please select<\/option>\n                            <option>Anesthesiology<\/option>\n                            <option>Audiology<\/option>\n                            <option>Behavioral Neurology &#038; Neuropsychiatry<\/option>\n                            <option>Biology<\/option>\n                            <option>Biomedical Engineering<\/option>\n                            <option>Cardiology<\/option>\n                            <option>Clinical Biochemical Genetics<\/option>\n                            <option>Dentistry and Odontology<\/option>\n                            <option>Dermatology<\/option>\n                            <option>Diagnostic Radiology<\/option>\n                            <option>Electroencephalography<\/option>\n                            <option>Endocrinology, Diabetes &#038; Metabolism<\/option>\n                            <option>ENT\/Otorhinolaryngologist<\/option>\n                            <option>Epileptology<\/option>\n                            <option>Gastroenterology<\/option>\n                            <option>General Practice\/Family<\/option>\n                            <option>Genetics<\/option>\n                            <option>Hemostaseology<\/option>\n                            <option>Hearing and Speech<\/option>\n                            <option>Hematology<\/option>\n                            <option>Hematology &#038; Oncology<\/option>\n                            <option>Hemophilia Treatment Center Director<\/option>\n                            <option>Hepatology<\/option>\n                            <option>Infectious Diseases<\/option>\n                            <option>Infusion Nurse<\/option>\n                            <option>Infusion Therapy<\/option>\n                            <option>Intensive Care<\/option>\n                            <option>Internal Medicine<\/option>\n                            <option>Kinesiology<\/option>\n                            <option>Laboratory Management<\/option>\n                            <option>Medical Student<\/option>\n                            <option>Neonatology<\/option>\n                            <option>Nephrology<\/option>\n                            <option>Neurology<\/option>\n                            <option>Neuromuscular Medicine<\/option>\n                            <option>Nurse<\/option>\n                            <option>Nurse Practitioner<\/option>\n                            <option>Nutrition, Metabolic<\/option>\n                            <option>Obstetrics<\/option>\n                            <option>Occupational Health<\/option>\n                            <option>Oncology<\/option>\n                            <option>Ophthalmology<\/option>\n                            <option>Orthopedics<\/option>\n                            <option>Palliative\/Hospice<\/option>\n                            <option>Pediatric Allergy\/Immunology<\/option>\n                            <option>Pediatric Anesthesiology<\/option>\n                            <option>Pediatric Cardiology<\/option>\n                            <option>Pediatric Dentistry<\/option>\n                            <option>Pediatric Endocrinology<\/option>\n                            <option>Pediatric Endocrinology, Diabetes &#038; Metabolism<\/option>\n                            <option>Pediatric ENT<\/option>\n                            <option>Pediatric Gastroenterology<\/option>\n                            <option>Pediatric Gastroenterology &#038; Metabolism<\/option>\n                            <option>Pediatric Genetics<\/option>\n                            <option>Pediatric Hematology<\/option>\n                            <option>Pediatric Hematology-Oncology<\/option>\n                            <option>Pediatric Metabolism<\/option>\n                            <option>Pediatric Neurology<\/option>\n                            <option>Pediatric Neurosurgery<\/option>\n                            <option>Pediatric Oncology<\/option>\n                            <option>Pediatric Ophthalmology and Strabismus Specialist<\/option>\n                            <option>Pediatric Orthopedics<\/option>\n                            <option>Pediatric Pneumology<\/option>\n                            <option>Pediatric Radiology<\/option>\n                            <option>Pediatric Rheumatology<\/option>\n                            <option>Pediatrics<\/option>\n                            <option>Pharmacist<\/option>\n                            <option>Phonoaudiology<\/option>\n                            <option>Physiatry<\/option>\n                            <option>Physician Assistant<\/option>\n                            <option>Physiotherapy<\/option>\n                            <option>Primary Care<\/option>\n                            <option>Psychology \/ Psychiatry<\/option>\n                            <option>Pulmonology<\/option>\n                            <option>Radiology (MRI imaging)<\/option>\n                            <option>Research<\/option>\n                            <option>Rheumatology<\/option>\n                            <option>Social Worker<\/option>\n                            <option>Surgery<\/option>\n                            <option>Transfusion Medicine<\/option>\n                            <option>Traumatology<\/option>\n                            <option value=\"Unknown\">Other<\/option>\n                        <\/select>\n                    <\/div>\n\n                    <div class=\"form-item check-item\">\n                        <input type=\"checkbox\" id=\"rep-contact-me\" name=\"rep_contact_me\">\n                        <label for=\"rep-contact-me\">I\u2019d like a BioMarin representative to contact me to learn more about PKU resources.<br><small><em>A representative will reach out to you shortly.<\/em><\/small><\/label>\n                    <\/div>\n\n                    <div class=\"form-item check-item\">\n                        <input type=\"checkbox\" id=\"accept-ts-cs\" name=\"accept_ts_cs\" required\n                        data-pristine-required-message=\"Please agree to the terms of use.\">\n                        <label for=\"accept-ts-cs\">By checking the box to the left and clicking &ldquo;Submit&rdquo; below, I confirm I am at least 18 years old; and confirm I agree to BioMarin\u2019s <a href=\"https:\/\/www.biomarin.com\/data-privacy-center\/\" target=\"_blank\">Privacy Policy and CCPA Notice<\/a> and <a href=\"https:\/\/medinfoterms.com\/\" target=\"_blank\">Terms of Use<\/a>; consent to BioMarin, its successors, agents, and\/or assigns using the email address I have provided to keep me informed about updates about news and developments about PKU; and confirm I understand these communications\/materials may contain information that markets or advertises BioMarin products, goods, or services.<span class=\"required\">*<\/span><\/label>\n                    <\/div>\n\n                    <div class=\"form-item\">\n           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