{"id":2414,"date":"2024-04-30T16:14:16","date_gmt":"2024-04-30T16:14:16","guid":{"rendered":"https:\/\/hcp.biomarin.com\/en-us\/achondroplasia\/?page_id=2414"},"modified":"2025-05-14T12:43:52","modified_gmt":"2025-05-14T12:43:52","slug":"resources","status":"publish","type":"page","link":"https:\/\/hcp.biomarin.com\/en-us\/achondroplasia\/resources\/","title":{"rendered":"Resources"},"content":{"rendered":"<div id=\"acf-block-64256295ccd10\" class=\"hero hero-no-overlay pull-bottom\">\n            <div class=\"hero-background-image hero-background-image-desktop\" style=\"background-image: url(https:\/\/hcp.biomarin.com\/en-us\/achondroplasia\/wp-content\/uploads\/sites\/2\/2023\/01\/home_hero_v2-2000x800.jpg);\"><\/div>\n\t    <div class=\"hero-background-image hero-background-image-mobile\" style=\"background-image: url(https:\/\/hcp.biomarin.com\/en-us\/achondroplasia\/wp-content\/uploads\/sites\/2\/2022\/12\/mobile_bg.png?v=0.122);\"><\/div>\n    \t<div class=\"overlay\"><\/div>\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"hero-content\">\n\t\t\t    \t\t\t\t\t\t\t\t\t\t\t\t    <h1>Achondroplasia resource library\n<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t\t    <p>Deepen your knowledge with achondroplasia fact sheets and resources<\/p>\n\t\t\t\t\t\t\t\t\n                <p class=\"inline-buttons\">\n                                                        <\/p>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n\n<div id=\"acf-block-64256295ccd3d\" class=\"block boxed-content boxed-content-white\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"box\">\n\t\t\t\t\t\t\t\t\n<div id=\"Growth-Curve\" class=\"image-text-block bottom-border\">\n            <div class=\"image-block medium\">\n            <figure>\n                <div class=\"image image-rounded\">\n                    <img decoding=\"async\" class=\"\" src=\"https:\/\/hcp.biomarin.com\/en-us\/achondroplasia\/wp-content\/uploads\/sites\/2\/2024\/04\/GrowthCurve-Thumbnail2.png?v=0.122\" alt=\"\" \/>                <\/div>\n            <\/figure>\n        <\/div>\n        <div class=\"content-block\">\n                    <h3>Achondroplasia Growth Curves\n<\/h3>\n                            <p>Achondroplasia-specific growth charts developed using the largest and most comprehensive dataset of measurements to date.<\/p>\n                                            <p><a class=\"button button-download\" href=\"https:\/\/hcp.biomarin.com\/en-us\/achondroplasia\/wp-content\/uploads\/sites\/2\/2024\/05\/US-ACH-00385_ACH-DSE_Growth-Curves-Printable_v05_INT.pdf?v=0.122\" target=\"_blank\">Download<\/a><\/p>\n                        <\/div>\n<\/div>\n\n<div id=\"AAP-tool\" class=\"image-text-block bottom-border\">\n            <div class=\"image-block medium\">\n            <figure>\n                <div class=\"image image-rounded\">\n                    <img decoding=\"async\" class=\"\" src=\"https:\/\/hcp.biomarin.com\/en-us\/achondroplasia\/wp-content\/uploads\/sites\/2\/2024\/04\/Screenshot-2024-04-25-at-14.39.51.png?v=0.122\" alt=\"AAP tool thumbnail\" \/>                <\/div>\n            <\/figure>\n        <\/div>\n        <div class=\"content-block\">\n                    <h3>Interactive Guidance: The American Association of Pediatrics Guidance Tool\n<\/h3>\n                            <p>Sort and expand the latest insights into diagnosis, management, treatment, and more according to developmental stage with this interactive tool.<\/p>\n                                            <p><a class=\"button button-arrow\" href=\"https:\/\/hcp.biomarin.com\/en-us\/achondroplasia\/aap-tool\/\" target=\"_self\">Explore the AAP Tool<\/a><\/p>\n                        <\/div>\n<\/div>\n\n<div id=\"Complication-Timeline\" class=\"image-text-block bottom-border\">\n            <div class=\"image-block medium\">\n            <figure>\n                <div class=\"image image-rounded\">\n                    <img decoding=\"async\" class=\"\" src=\"https:\/\/hcp.biomarin.com\/en-us\/achondroplasia\/wp-content\/uploads\/sites\/2\/2022\/11\/timeline_resource_img@2x.jpg?v=0.122\" alt=\"Achondroplasia timeline complications factsheet\" \/>                <\/div>\n            <\/figure>\n        <\/div>\n        <div class=\"content-block\">\n                    <h3>Complication Timeline Resource\n<\/h3>\n                            <p>A comprehensive review of common complications by age group, including suggestions for proactive monitoring, management, and referral recommendations.<\/p>\n                                            <p><a class=\"button button-download\" href=\"https:\/\/hcp.biomarin.com\/en-us\/achondroplasia\/wp-content\/uploads\/sites\/2\/2025\/01\/ACH-HCP-Complication-Timeline-Leave-Behind.pdf?v=0.101\" target=\"_blank\">Download<\/a><\/p>\n                        <\/div>\n<\/div>\n\n<div id=\"Coordinated-Care\" class=\"image-text-block bottom-border\">\n            <div class=\"image-block medium\">\n            <figure>\n                <div class=\"image image-rounded\">\n                    <img decoding=\"async\" class=\"\" src=\"https:\/\/hcp.biomarin.com\/en-us\/achondroplasia\/wp-content\/uploads\/sites\/2\/2022\/11\/workshhet_img@2x.jpg?v=0.122\" alt=\"Achondroplasia coordinated care team worksheet\" \/>                <\/div>\n            <\/figure>\n        <\/div>\n        <div class=\"content-block\">\n                    <h3>Coordinated Care Team Worksheet\n<\/h3>\n                            <p>A resource designed to help you start a conversation with patients and their caregivers about establishing a multidisciplinary care team of specialists.<\/p>\n                                            <p><a class=\"button button-download\" href=\"https:\/\/hcp.biomarin.com\/en-us\/achondroplasia\/wp-content\/uploads\/sites\/2\/2025\/01\/ACH-HCP-Care-Team-Worksheet-Leave-Behind.pdf?v=0.101\" target=\"_blank\">Download<\/a><\/p>\n                        <\/div>\n<\/div>\n\n<div id=\"Consensus-Statement\" class=\"image-text-block block-tight-bottom\">\n            <div class=\"image-block medium\">\n            <figure>\n                <div class=\"image image-rounded\">\n                    <img decoding=\"async\" class=\"\" src=\"https:\/\/hcp.biomarin.com\/en-us\/achondroplasia\/wp-content\/uploads\/sites\/2\/2023\/02\/Screenshot-2023-02-06-at-16.50.55-750x734.png\" alt=\"Dr Rav Savarirayan\" \/>                <\/div>\n            <\/figure>\n        <\/div>\n        <div class=\"content-block\">\n                    <h3>The International Consensus Statement\n<\/h3>\n                            <p>Easily filter through key points of the International Consensus Statement to cover topics on the diagnosis, multidisciplinary management, and lifelong care of individuals with achondroplasia.<\/p>\n                                            <p><a class=\"button button-arrow\" href=\"https:\/\/hcp.biomarin.com\/en-us\/achondroplasia\/international-consensus-statement\/\" target=\"_self\">Explore the Consensus Statement<\/a><\/p>\n                        <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-64256295ccdcd\" class=\"block wrapped-content\">\n    <div class=\"wrapper\">\n        <div class=\"inner-wrapper\">\n                        <\/div>\n    <\/div>\n<\/div>\n\n<div id=\"Video-1\" class=\"block split-content equal-bias bottom-border\" data-muted-autoplay=\"false\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t                                                                <div class=\"content-block first-block\">\n                                                                                                                                                                                                                                                <div class=\"video-poster\">\n\t\t\t                            <a class=\"modal-video permitted\" href=\"https:\/\/www.youtube.com\/watch?v=jzS7nSCA9Uo\" style=\"background-image: url(https:\/\/hcp.biomarin.com\/en-us\/achondroplasia\/wp-content\/uploads\/sites\/2\/2022\/11\/video1_still@2x.jpg?v=0.122);\">Play<\/a>\n\t\t                            <\/div>\n                                    \n                                                                                                                    \n                                                                                                                \n\t\t                                                                            <\/div>\n                    \n                                            <div class=\"content-block second-block\">\n                                                                                                <h4>What is achondroplasia?<\/h4>\n<p>Experts in achondroplasia discuss the mechanism of disease and its long-term considerations<\/p>\n                                                                                    <\/div>\n                                                \t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-64256295cce20\" class=\"block split-content equal-bias bottom-border\" data-muted-autoplay=\"false\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t                                                                <div class=\"content-block first-block\">\n                                                                                                                                                                                                                                                <div class=\"video-poster\">\n\t\t\t                            <a class=\"modal-video permitted\" href=\"https:\/\/www.youtube.com\/watch?v=EBph0mKMV8o\" style=\"background-image: url(https:\/\/hcp.biomarin.com\/en-us\/achondroplasia\/wp-content\/uploads\/sites\/2\/2022\/11\/video2_still@2x.jpg?v=0.122);\">Play<\/a>\n\t\t                            <\/div>\n                                    \n                                                                                                                    \n                                                                                                                \n\t\t                                                                            <\/div>\n                    \n                                            <div class=\"content-block second-block\">\n                                                                                                <h4>Complications through life stages<\/h4>\n<p>Hear specialists describe the complications of achondroplasia over time and their management through the multidisciplinary team model<\/p>\n                                                                                    <\/div>\n                                                \t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-64256295cce3b\" class=\"block cards cards-2-col\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"cards-title\">\n\t\t\t    \t\t\t\t\t\t\t<\/div>\n\t\t\t<div class=\"cards-wrapper\">\n\t\t\t    \n<div id=\"acf-block-64256295cce5c\" class=\"card card-fixed-button\" data-muted-autoplay=\"false\">\n    \t    \n\n                    <img decoding=\"async\" class=\"card-image\" src=\"https:\/\/hcp.biomarin.com\/en-us\/achondroplasia\/wp-content\/uploads\/sites\/2\/2022\/11\/mother-with-child.jpg?v=0.122\" alt=\"mother sat reading with child with Achodroplasia\" \/>        \n\t    <div class=\"card-content\">\n                            <h4>Managing Achondroplasia\n<\/h4>\n        \n                                                                                                            <p>Primary care providers can help to coordinate a multidisciplinary approach to care <\/p>\n                                                                                                                                                                                                                                                                        \n                                                                                        <\/div>\n                                <div class=\"card-actions\">\n                            \n                            <p><a class=\"button button-text button-arrow\" href=\"https:\/\/hcp.biomarin.com\/en-us\/achondroplasia\/management\/\" target=\"_self\">Learn more about achondroplasia management<\/a><\/p>\n                                                                                    <\/div>\n<\/div>\n\n<div id=\"acf-block-64256295cce7a\" class=\"card card-fixed-button\" data-muted-autoplay=\"false\">\n    \t    \n\n                    <img decoding=\"async\" class=\"card-image\" src=\"https:\/\/hcp.biomarin.com\/en-us\/achondroplasia\/wp-content\/uploads\/sites\/2\/2022\/11\/Impact_Card@2x.jpg?v=0.122\" alt=\"\" \/>        \n\t    <div class=\"card-content\">\n                            <h4>Achondroplasia complications\n<\/h4>\n        \n                                                                                                            <p>Common complications can be expected across an individual&#8217;s lifetime<\/p>\n                                                                                                                                                                                                                                                                        \n                                                                                        <\/div>\n                                <div class=\"card-actions\">\n                            \n                            <p><a class=\"button button-text button-arrow\" href=\"https:\/\/hcp.biomarin.com\/en-us\/achondroplasia\/impact\/\" target=\"_self\">Learn more about achondroplasia complications<\/a><\/p>\n                                                                                    <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-64256295cce92\" class=\"block cards cards-1-col\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"cards-title\">\n\t\t\t    \t\t\t\t\t\t\t<\/div>\n\t\t\t<div class=\"cards-wrapper\">\n\t\t\t    \n<div id=\"acf-block-64256295ccec9\" class=\"card\" data-muted-autoplay=\"false\">\n        <div class=\"card-content\">\n                            <h4>Further resources\n<\/h4>\n        \n                                                                                                                                                                                                                                                                                    \n                                                        \n                            <p><a class=\"button button-text button-arrow\" href=\"https:\/\/hcp.biomarin.com\/en-us\/achondroplasia\/stay-updated-contact\/\" target=\"_self\">Request a BioMarin Team Member<\/a><\/p>\n                                                                                                                                                                                                                                                                        \n                                                        \n                            <p><a class=\"button button-text button-arrow\" href=\"https:\/\/www.invitae.com\/en\/discover-dysplasias\/?utm_source=discoverdysplasias&#038;utm_medium=redirect\" target=\"_blank\">Learn about a no-charge genetic test for skeletal dysplasias<\/a><\/p>\n                                                                                    <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-64256295cebf1\" class=\"block boxed-content quiz\">\n    <div class=\"wrapper\">\n        <div class=\"inner-wrapper\">\n            <div class=\"box\">\n\t\t\t\t<div class=\"quiz-question\">\n                    \t\t\t\t\t    <h2>Test your knowledge\n<\/h2>\n\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t    <p>Children with achondroplasia only require medical care for physical challenges.<\/p>\n\t\t\t\t\t\n                                            <div class=\"quiz-question-responses\">\n                                                                                                                                                            <a class=\"button button-ghost\" href=\"#\" data-correct-answer=\"false\">\n                                    True\n                                <\/a>\n                                                                                                                                                            <a class=\"button button-ghost\" href=\"#\" data-correct-answer=\"true\">\n                                    False\n                                <\/a>\n                                                    <\/div>\n\t\t\t\t\t\n                                            <div class=\"quiz-question-submit\">\n                            <p><a class=\"button\" href=\"#\">Submit<\/a><\/p>\n                        <\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\n\t\t\t\t<div class=\"quiz-answer\" style=\"display:none;\">\n\t\t\t\t    \t\t\t\t        \t\t\t\t\t    <p class=\"quiz-answer-choice\">You chose: %choice%\n<\/p>\n\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t    <div class=\"split-content\">\n                            <div class=\"wrapper\">\n                                <div class=\"inner-wrapper\">\n                                    <div class=\"content-block\">\n                                                                                    <h2 class=\"correct\" style=\"display:none;\">Correct!\n<\/h2>\n                                        \n                                                                                    <h2 class=\"incorrect\" style=\"display:none;\">That\u2019s not it \u2013 The correct answer is %answer%\n<\/h2>\n                                        \n                                                                                    <p>Children with achondroplasia may also face <b>functional and psychosocial challenges,<\/b> especially as they enter school and transition into puberty.<sup>1-3<\/sup> <\/p>\n                                                                            <\/div>\n                                    <div class=\"content-block\">\n                                                                                    <figure>\n                                                <div class=\"image\">\n                                                    <img decoding=\"async\" class=\"\" src=\"https:\/\/hcp.biomarin.com\/en-us\/achondroplasia\/wp-content\/uploads\/sites\/2\/2023\/03\/Screenshot_2023-03-30_at_11.17.20-removebg-preview.png?v=0.122\" alt=\"\" \/>                                                <\/div>\n                                            <\/figure>\n                                                                            <\/div>\n                                <\/div>\n                            <\/div>\n                        <\/div>\n\t\t\t\t\t\n\t\t\t\t\t                        <p class=\"references\">\n                            <a class=\"quiz-references-modal\" href=\"#quiz-references-modal\">References<\/a>\n                        <\/p>\n                        <div id=\"quiz-references-modal\" class=\"quiz-references white-popup-block mfp-hide\">\n                            <div class=\"box references\">\n                                <p><a class=\"modal-close\" href=\"#\">Close references<\/a><\/p>\n                                                                    <h2>References:\n<\/h2>\n                                                                <ol>\n                                                                                                                                                                                                        <li><span>Hoover-Fong J, Scott CI, Jones MC; COMMITTEE ON GENETICS. Health Supervision for People With Achondroplasia.\u202fPediatrics. 2020;145(6):e20201010. doi:10.1542\/peds.2020-1010. \n<\/span><\/li>\n                                                                                                                                                                                                                                                <li><span>Wright MJ, Irving MD. Clinical management of achondroplasia.\u202fArch Dis Child. 2012;97(2):129-134. doi:10.1136\/adc.2010.189092. \n<\/span><\/li>\n                                                                                                                                                                                                                                                <li><span>Ireland PJ, McGill J, Zankl A, et al. Functional performance in young Australian children with achondroplasia.\u202fDev Med Child Neurol. 2011;53(10):944-950.\n<\/span><\/li>\n                                                                                                            <\/ol>\n                            <\/div>\n                        <\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t<\/div>\n        <\/div>\n    <\/div>\n<\/div>\n\n<div id=\"acf-block-64256295cec4f\" class=\"block call-to-action\">\n    <div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"box\" style=\"\">\n\t\t\t\t<div class=\"overlay\"><\/div>\n\t\t\t\t<div class=\"cta-content\">\n\t\t\t\t    \t\t\t\t\t<div class=\"cta-content-main\">\n                        <div class=\"content-block\">\n\t\t\t\t\t        \t\t\t\t\t        \t\t\t\t\t\t        <h2 class=\"h3\">Stay updated\n<\/h2>\n\t\t\t\t\t\t    \t\t\t\t\t\t    \t\t\t\t\t\t        <p>Receive the latest news and information about achondroplasia, including when new content such as patient resources are added to the website.<\/p>\n\t\t\t\t\t\t    \t\t\t\t\t    <\/div>\n\t\t\t\t\t                                <div class=\"content-block\">\n                                <p><a class=\"button button-ghost button-arrow\" href=\"https:\/\/hcp.biomarin.com\/en-us\/achondroplasia\/stay-updated-contact\/\" target=\"_self\">Get updates<\/a><\/p>\n                            <\/div>\n\t\t\t\t\t                        <\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-64256295cee18\" class=\"block print-page\">\n    <div class=\"wrapper\">\n        <div class=\"inner-wrapper\">\n            <p><a class=\"button button-print\" href=\"#\">Print this page<\/a><\/p>\n        <\/div>\n    <\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":8,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-2414","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Achondroplasia Articles &amp; Fact Sheets | Resources<\/title>\n<meta name=\"description\" content=\"Deepen your Achondroplasia knowledge with downloadable educational brochures, worksheets, review forms and more.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/hcp.biomarin.com\/en-us\/achondroplasia\/resources\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta 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