{"id":5607,"date":"2025-10-21T11:44:23","date_gmt":"2025-10-21T11:44:23","guid":{"rendered":"https:\/\/cln2dsehcp-dev-001-e0bbcwdbawcwa3ak.westus2-01.azurewebsites.net\/en-gb\/cln2\/expert\/?page_id=5607"},"modified":"2026-02-18T13:59:49","modified_gmt":"2026-02-18T13:59:49","slug":"lynk","status":"publish","type":"page","link":"https:\/\/hcp.biomarin.com\/en-gb\/cln2\/expert\/lynk\/","title":{"rendered":"LYNK no reg"},"content":{"rendered":"
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LYNK- Lysosomal & NCL Insights and Knowledge-sharing Network<\/h1>\n

This global initiative connects specialists, treatment centres, and referral networks together to optimise long term care for patients with NCLs.<\/p>\n

Our mission is to share best practices, align care standards, and optimise patient pathways while fostering thought leadership and advancing rare disease education and care.<\/p>\n

Through a series of interactive forums, educational resources, and expert-led webinars, LYNK provides a space to:
\n– Collaborate<\/strong> with peers and treatment centres to harmonise standards of care
\n– Share<\/strong> clinical experiences, challenges and evolving best practice
\n– Learn<\/strong> from real-world multidisciplinary perspectives
\n– Advance<\/strong> long-term outcomes for children living with NCLs<\/p>\n

Together, we can build stronger connections, improve patient pathways and support optimal outcomes for patients with NCL worldwide.<\/p>\n

Be part of the conversation. Be part of the change.<\/h3>\n <\/div>\n <\/div>\n <\/div>\n<\/div>\n\n
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\n *This programme is sponsored and funded by BioMarin and will contain information on BioMarin products. It is a promotional programme intended exclusively for healthcare professionals.\n <\/div>\n <\/div>\n <\/div>\n<\/div>\n\n
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Latest Resources\n<\/h2>\n

Download or watch the latest from the LYNK Network<\/p>\n <\/div>\n\t\t\t\t\t\t \n \n \n \n

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Resource<\/p>\n

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Welcome to LYNK\n<\/h2>\n

Connecting healthcare professionals together to collaborate, learn new insights and transform NCL care. Join now to explore.<\/p>\n

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