{"id":5607,"date":"2025-10-21T11:44:23","date_gmt":"2025-10-21T11:44:23","guid":{"rendered":"https:\/\/cln2dsehcp-dev-001-e0bbcwdbawcwa3ak.westus2-01.azurewebsites.net\/en-gb\/cln2\/expert\/?page_id=5607"},"modified":"2026-02-18T13:59:49","modified_gmt":"2026-02-18T13:59:49","slug":"lynk","status":"publish","type":"page","link":"https:\/\/hcp.biomarin.com\/en-gb\/cln2\/expert\/lynk\/","title":{"rendered":"LYNK no reg"},"content":{"rendered":"
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LYNK- Lysosomal & NCL Insights and Knowledge-sharing Network<\/h1>\n

This global initiative connects specialists, treatment centres, and referral networks together to optimise long term care for patients with NCLs.<\/p>\n

Our mission is to share best practices, align care standards, and optimise patient pathways while fostering thought leadership and advancing rare disease education and care.<\/p>\n

Through a series of interactive forums, educational resources, and expert-led webinars, LYNK provides a space to:
\n– Collaborate<\/strong> with peers and treatment centres to harmonise standards of care
\n– Share<\/strong> clinical experiences, challenges and evolving best practice
\n– Learn<\/strong> from real-world multidisciplinary perspectives
\n– Advance<\/strong> long-term outcomes for children living with NCLs<\/p>\n

Together, we can build stronger connections, improve patient pathways and support optimal outcomes for patients with NCL worldwide.<\/p>\n

Be part of the conversation. Be part of the change.<\/h3>\n <\/div>\n <\/div>\n <\/div>\n<\/div>\n\n
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\n *This programme is sponsored and funded by BioMarin and will contain information on BioMarin products. It is a promotional programme intended exclusively for healthcare professionals.\n <\/div>\n <\/div>\n <\/div>\n<\/div>\n\n
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Latest Resources\n<\/h2>\n

Download or watch the latest from the LYNK Network<\/p>\n <\/div>\n\t\t\t\t\t\t \n \n \n \n

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Watch now <\/a><\/p>\n <\/div>\n

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Welcome to LYNK\n<\/h2>\n

Prof Angela Schulz, Steering Committee Chair, welcomes you to LYNK: the Lysosomal and NCL Insights and Knowledge-sharing Network. This is a global initiative to connect specialists, treatment centres and referral networks to optimise long-term care for patients with CLN2.<\/p>\n

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Watch now <\/a><\/p>\n <\/div>\n <\/div>\n <\/div>\n <\/article>\n \n \n \n \n

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On Demand<\/p>\n

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LYNK Inaugural Webinar \u2013 November 2025\n<\/h2>\n

Welcome to this inaugural LYNK webinar with Professor Angela Schulz and an esteemed global faculty to discuss transitioning patients with CLN2 disease from paediatric to adolescent care, with practical guidance on meeting the evolving needs of patients and working effectively with caregivers and care teams to navigate the process.<\/p>\n

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Watch now <\/a><\/p>\n <\/div>\n <\/div>\n <\/div>\n <\/article>\n \t\t<\/div>\n\t<\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-5607","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\nLYNK no reg - BioMarin CLN2 Expert HCP EN-GB<\/title>\n<meta name=\"description\" content=\"LYNK- Lysosomal & NCL Insights and Knowledge-sharing Network. 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