{"id":25,"date":"2022-11-03T18:35:42","date_gmt":"2022-11-03T18:35:42","guid":{"rendered":"https:\/\/achdsehcp-dev-001.azurewebsites.net\/en-us\/achondroplasia\/?page_id=25"},"modified":"2024-04-16T11:33:00","modified_gmt":"2024-04-16T11:33:00","slug":"informationsquellen","status":"publish","type":"page","link":"https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/informationsquellen\/","title":{"rendered":"Resources"},"content":{"rendered":"
\n
<\/div>\n\t
<\/div>\n \t
<\/div>\n\t
\n\t\t
\n\t\t\t
\n\t\t\t \t\t\t\t\t\t\t\t\t\t\t\t

Mediathek\n<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t\t

Vertiefen Sie Ihr Wissen mit Informationsbl\u00e4ttern und Ressourcen zu Achondroplasie<\/p>\n\t\t\t\t\t\t\t\t\n

\n <\/p>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n\n

\n\t
\n\t\t
\n\t\t\t
\n\t\t\t\t\t\t\t\t\n
\n
\n
\n
\n \"\" <\/div>\n <\/figure>\n <\/div>\n
\n

Bleiben Sie \u00fcber die Entwicklungen bei Achondroplasie auf dem Laufenden\n<\/h3>\n

Treten Sie der ersten digitalen Community f\u00fcr medizinisches Fachpersonal bei, die darauf abzielt, die klinischen Ergebnisse und die Lebensqualit\u00e4t von Kindern und Erwachsenen mit Achondroplasie zu verbessern.<\/p>\n

Achondroplasia.expert<\/a><\/p>\n <\/div>\n<\/div>\n\n

\n
\n
\n
\n \"Factsheet <\/div>\n <\/figure>\n <\/div>\n
\n

Ressource zur Zeitleiste von Komplikationen\n<\/h3>\n

Eine umfassende \u00dcbersicht \u00fcber h\u00e4ufige Komplikationen nach Altersgruppe, einschlie\u00dflich Vorschl\u00e4gen f\u00fcr proaktive \u00dcberwachung, Management und \u00dcberweisungsempfehlungen.<\/p>\n

Herunterladen<\/a><\/p>\n <\/div>\n<\/div>\n\n

\n
\n
\n
\n \"Arbeitsblatt <\/div>\n <\/figure>\n <\/div>\n
\n

Arbeitsblatt f\u00fcr das koordinierte Pflegeteam\n<\/h3>\n

Eine Ressource, die Ihnen dabei helfen soll, ein Gespr\u00e4ch mit Patienten und ihren Betreuern \u00fcber die Einrichtung eines multidisziplin\u00e4ren Pflegeteams aus Spezialisten zu beginnen.<\/p>\n

Herunterladen<\/a><\/p>\n <\/div>\n<\/div>\n\n

\n
\n
\n
\n \"Dr <\/div>\n <\/figure>\n <\/div>\n
\n

Achondroplasia International Consensus Statement Tool\n<\/h3>\n

Ein Tool zum Navigieren in der Internationalen Konsenserkl\u00e4rung zur Diagnose, multidisziplin\u00e4ren Behandlung und lebenslangen Pflege von Menschen mit Achondroplasie.<\/p>\n

Entdecken Sie das Konsens-Tool<\/a><\/p>\n <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n

\n
\n
\n <\/div>\n <\/div>\n<\/div>\n\n
\n\t
\n\t\t
\n\t\t
\n
\n\t\t\t Play<\/a>\n\t\t <\/div>\n \n \n \n\t\t <\/div>\n \n
\n

Was ist Achondroplasie?<\/h4>\n

Achondroplasie-Experten er\u00f6rtern den Krankheitsmechanismus und die langfristige Perspektive<\/p>\n <\/div>\n \t\t<\/div>\n\t<\/div>\n<\/div>\n\n

\n\t
\n\t\t
\n\t\t
\n
\n\t\t\t Play<\/a>\n\t\t <\/div>\n \n \n \n\t\t <\/div>\n \n
\n

Komplikationen in unterschiedlichen Lebensphasen<\/h4>\n

Experten beschreiben die Komplikationen der Achondroplasie im Verlauf der Zeit und ihre Behandlung durch das multidisziplin\u00e4re Team<\/p>\n <\/div>\n \t\t<\/div>\n\t<\/div>\n<\/div>\n\n

\n\t
\n\t\t
\n\t\t\t
\n\t\t\t \t\t\t\t\t\t\t<\/div>\n\t\t\t
\n\t\t\t \n
\n \t \n\n \"mother \n\t
\n

Umgang mit Achondroplasie\n<\/h4>\n \n

Erstversorger k\u00f6nnen dabei helfen, einen multidisziplin\u00e4ren Pflegeansatz zu koordinieren<\/p>\n \n <\/div>\n

\n \n

Erfahren Sie mehr \u00fcber die Behandlung von Achondroplasie<\/a><\/p>\n <\/div>\n<\/div>\n\n

\n \t \n\n \"\" \n\t
\n

Komplikationen bei Achondroplasie\n<\/h4>\n \n

Im Laufe des Lebens ist mit h\u00e4ufigen Komplikationen zu rechnen<\/p>\n \n <\/div>\n

\n \n

Erfahren Sie mehr \u00fcber Komplikationen bei Achondroplasie<\/a><\/p>\n <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n

\n
\n
\n
\n\t\t\t\t
\n \t\t\t\t\t

Testen Sie Ihr Wissen\n<\/h2>\n\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t

Kinder mit Achondroplasie ben\u00f6tigen nur bei k\u00f6rperlichen Beschwerden medizinische Versorgung.<\/p>\n\t\t\t\t\t\n

\n \n Wahr\n <\/a>\n \n Falsch\n <\/a>\n <\/div>\n\t\t\t\t\t\n
\n

Einreichen<\/a><\/p>\n <\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\n\t\t\t\t

\n\t\t\t\t \t\t\t\t \t\t\t\t\t

Ihre Wahl: %choice%\n<\/p>\n\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t

\n
\n
\n
\n

Richtig!\n<\/h2>\n \n

Das ist es nicht \u2013 die richtige Antwort ist %answer%\n<\/h2>\n \n

Kinder mit Achondroplasie k\u00f6nnen auch mit funktionellen und psychosozialen Herausforderungen konfrontiert sein, insbesondere wenn sie in die Schule kommen und in die Pubert\u00e4t \u00fcbergehen.1-3<\/sup><\/p>\n <\/div>\n

\n
\n
\n \"\" <\/div>\n <\/figure>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n\t\t\t\t\t\n\t\t\t\t\t

\n Literaturangaben<\/a>\n <\/p>\n

\n
\n

Schlie\u00dfen Sie Referenzen<\/a><\/p>\n

Literaturangaben:\n<\/h2>\n
    \n
  1. Hoover-Fong J, Scott CI, Jones MC; COMMITTEE ON GENETICS. Health Supervision for People With Achondroplasia.\u202fPediatrics. 2020;145(6):e20201010. doi:10.1542\/peds.2020-1010. \n<\/span><\/li>\n
  2. Wright MJ, Irving MD. Clinical management of achondroplasia.\u202fArch Dis Child. 2012;97(2):129-134. doi:10.1136\/adc.2010.189092. \n<\/span><\/li>\n
  3. Ireland PJ, McGill J, Zankl A, et al. Functional performance in young Australian children with achondroplasia.\u202fDev Med Child Neurol. 2011;53(10):944-950.\n<\/span><\/li>\n <\/ol>\n <\/div>\n <\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t<\/div>\n <\/div>\n <\/div>\n<\/div>\n\n
    \n
    \n
    \n

    Drucke diese Seite<\/a><\/p>\n <\/div>\n <\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":4,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-25","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\nAchondroplasie Artikel und Faktenbl\u00e4tter | Ressourcen<\/title>\n<meta name=\"description\" content=\"Vertiefen Sie Ihr Achondroplasie-Wissen mit herunterladbaren Lehrbrosch\u00fcren, Arbeitsbl\u00e4ttern, \u00dcberpr\u00fcfungsformularen und mehr.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/informationsquellen\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Achondroplasie Artikel und Faktenbl\u00e4tter | Ressourcen\" \/>\n<meta property=\"og:description\" content=\"Vertiefen Sie Ihr Achondroplasie-Wissen mit herunterladbaren Lehrbrosch\u00fcren, Arbeitsbl\u00e4ttern, \u00dcberpr\u00fcfungsformularen und mehr.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/informationsquellen\/\" \/>\n<meta property=\"og:site_name\" content=\"BioMarin ACH DSE HCP DE-DE\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/BioMarinOfficial\/\" \/>\n<meta property=\"article:modified_time\" content=\"2024-04-16T11:33:00+00:00\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/hcp.biomarin.com\\\/de-de\\\/achondroplasia\\\/informationsquellen\\\/\",\"url\":\"https:\\\/\\\/hcp.biomarin.com\\\/de-de\\\/achondroplasia\\\/informationsquellen\\\/\",\"name\":\"Achondroplasie Artikel und Faktenbl\u00e4tter | Ressourcen\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/hcp.biomarin.com\\\/de-de\\\/achondroplasia\\\/#website\"},\"datePublished\":\"2022-11-03T18:35:42+00:00\",\"dateModified\":\"2024-04-16T11:33:00+00:00\",\"description\":\"Vertiefen Sie Ihr Achondroplasie-Wissen mit herunterladbaren Lehrbrosch\u00fcren, Arbeitsbl\u00e4ttern, \u00dcberpr\u00fcfungsformularen und mehr.\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/hcp.biomarin.com\\\/de-de\\\/achondroplasia\\\/informationsquellen\\\/#breadcrumb\"},\"inLanguage\":\"de\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/hcp.biomarin.com\\\/de-de\\\/achondroplasia\\\/informationsquellen\\\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/hcp.biomarin.com\\\/de-de\\\/achondroplasia\\\/informationsquellen\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/hcp.biomarin.com\\\/de-de\\\/achondroplasia\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Resources\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/hcp.biomarin.com\\\/de-de\\\/achondroplasia\\\/#website\",\"url\":\"https:\\\/\\\/hcp.biomarin.com\\\/de-de\\\/achondroplasia\\\/\",\"name\":\"BioMarin ACH DSE HCP DE-DE\",\"description\":\"\",\"publisher\":{\"@id\":\"https:\\\/\\\/hcp.biomarin.com\\\/de-de\\\/achondroplasia\\\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/hcp.biomarin.com\\\/de-de\\\/achondroplasia\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"de\"},{\"@type\":\"Organization\",\"@id\":\"https:\\\/\\\/hcp.biomarin.com\\\/de-de\\\/achondroplasia\\\/#organization\",\"name\":\"BioMarin\",\"url\":\"https:\\\/\\\/hcp.biomarin.com\\\/de-de\\\/achondroplasia\\\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"de\",\"@id\":\"https:\\\/\\\/hcp.biomarin.com\\\/de-de\\\/achondroplasia\\\/#\\\/schema\\\/logo\\\/image\\\/\",\"url\":\"https:\\\/\\\/hcp.biomarin.com\\\/de-de\\\/achondroplasia\\\/wp-content\\\/uploads\\\/sites\\\/4\\\/2023\\\/01\\\/biomarin-logo.svg\",\"contentUrl\":\"https:\\\/\\\/hcp.biomarin.com\\\/de-de\\\/achondroplasia\\\/wp-content\\\/uploads\\\/sites\\\/4\\\/2023\\\/01\\\/biomarin-logo.svg\",\"width\":\"1024\",\"height\":\"1024\",\"caption\":\"BioMarin\"},\"image\":{\"@id\":\"https:\\\/\\\/hcp.biomarin.com\\\/de-de\\\/achondroplasia\\\/#\\\/schema\\\/logo\\\/image\\\/\"},\"sameAs\":[\"https:\\\/\\\/www.facebook.com\\\/BioMarinOfficial\\\/\",\"https:\\\/\\\/www.linkedin.com\\\/company\\\/biomarin\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Achondroplasie Artikel und Faktenbl\u00e4tter | Ressourcen","description":"Vertiefen Sie Ihr Achondroplasie-Wissen mit herunterladbaren Lehrbrosch\u00fcren, Arbeitsbl\u00e4ttern, \u00dcberpr\u00fcfungsformularen und mehr.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/informationsquellen\/","og_locale":"de_DE","og_type":"article","og_title":"Achondroplasie Artikel und Faktenbl\u00e4tter | Ressourcen","og_description":"Vertiefen Sie Ihr Achondroplasie-Wissen mit herunterladbaren Lehrbrosch\u00fcren, Arbeitsbl\u00e4ttern, \u00dcberpr\u00fcfungsformularen und mehr.","og_url":"https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/informationsquellen\/","og_site_name":"BioMarin ACH DSE HCP DE-DE","article_publisher":"https:\/\/www.facebook.com\/BioMarinOfficial\/","article_modified_time":"2024-04-16T11:33:00+00:00","twitter_card":"summary_large_image","schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/informationsquellen\/","url":"https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/informationsquellen\/","name":"Achondroplasie Artikel und Faktenbl\u00e4tter | Ressourcen","isPartOf":{"@id":"https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/#website"},"datePublished":"2022-11-03T18:35:42+00:00","dateModified":"2024-04-16T11:33:00+00:00","description":"Vertiefen Sie Ihr Achondroplasie-Wissen mit herunterladbaren Lehrbrosch\u00fcren, Arbeitsbl\u00e4ttern, \u00dcberpr\u00fcfungsformularen und mehr.","breadcrumb":{"@id":"https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/informationsquellen\/#breadcrumb"},"inLanguage":"de","potentialAction":[{"@type":"ReadAction","target":["https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/informationsquellen\/"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/informationsquellen\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/"},{"@type":"ListItem","position":2,"name":"Resources"}]},{"@type":"WebSite","@id":"https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/#website","url":"https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/","name":"BioMarin ACH DSE HCP DE-DE","description":"","publisher":{"@id":"https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"de"},{"@type":"Organization","@id":"https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/#organization","name":"BioMarin","url":"https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/","logo":{"@type":"ImageObject","inLanguage":"de","@id":"https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/#\/schema\/logo\/image\/","url":"https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/wp-content\/uploads\/sites\/4\/2023\/01\/biomarin-logo.svg","contentUrl":"https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/wp-content\/uploads\/sites\/4\/2023\/01\/biomarin-logo.svg","width":"1024","height":"1024","caption":"BioMarin"},"image":{"@id":"https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/BioMarinOfficial\/","https:\/\/www.linkedin.com\/company\/biomarin"]}]}},"_links":{"self":[{"href":"https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/wp-json\/wp\/v2\/pages\/25","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/wp-json\/wp\/v2\/comments?post=25"}],"version-history":[{"count":183,"href":"https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/wp-json\/wp\/v2\/pages\/25\/revisions"}],"predecessor-version":[{"id":2659,"href":"https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/wp-json\/wp\/v2\/pages\/25\/revisions\/2659"}],"wp:attachment":[{"href":"https:\/\/hcp.biomarin.com\/de-de\/achondroplasia\/wp-json\/wp\/v2\/media?parent=25"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}